1 year.

Tomorrow is one year since I was hospitalized for colitis that we eventually learned was from C.Diff.
I’d go on methotrexate again in a heartbeat if I could, but I can’t use it again because of the damage that it and the c diff did to my kidneys. It helped so much with my autoimmune diseases even as it was doing that damage though. And the C Diff was due to the infections and antibiotics I had while on the methotrexate, because it lowered my immune system so much. I was so sick I could barely wake up. Once I was awake enough I could do things like talk on the phone, but I was having a hard time getting myself awake enough to remember my own name, let alone to talk to nurses or doctors or visitors. I struggled with that difficulty waking up for months after, though I no longer really deal with that.
My autoimmune diseases are back to where they were before the methotrexate, unfortunately.

I had a very bad day yesterday, with my autoimmune diseases. I told my family that it was one of the worst I’ve had for my joints in the last 3 or 4 months. Honestly though, it’s one of the worst I’ve had (excluding right around my surgery that I had in February) in most of a year. I’m scared that it’s going to become the norm again.

Anyway, too much musing on my autoimmune diseases.

I wanted to say how glad I am that I went to the doctor about the bowel pain I was having, and ended up in the hospital, because I’m alive.

I feel a little bit sick…

Ok… last year methotrexate tried to kill me. Despite this I actively encourage adults to use it if it’s a treatment option. It’s a good medicine, I just didn’t do well with it.

I’m finding out they use it on toddlers and small children. I cannot describe to you how that makes me feel. The closest I can come up with is horrified and absolutely sick to my stomach.

Of course, the thought of said children living in pain and with the diseases they have is horrifying too. I just… ouch.