Tomorrow is one year since I was hospitalized for colitis that we eventually learned was from C.Diff.
I’d go on methotrexate again in a heartbeat if I could, but I can’t use it again because of the damage that it and the c diff did to my kidneys. It helped so much with my autoimmune diseases even as it was doing that damage though. And the C Diff was due to the infections and antibiotics I had while on the methotrexate, because it lowered my immune system so much. I was so sick I could barely wake up. Once I was awake enough I could do things like talk on the phone, but I was having a hard time getting myself awake enough to remember my own name, let alone to talk to nurses or doctors or visitors. I struggled with that difficulty waking up for months after, though I no longer really deal with that.
My autoimmune diseases are back to where they were before the methotrexate, unfortunately.
I had a very bad day yesterday, with my autoimmune diseases. I told my family that it was one of the worst I’ve had for my joints in the last 3 or 4 months. Honestly though, it’s one of the worst I’ve had (excluding right around my surgery that I had in February) in most of a year. I’m scared that it’s going to become the norm again.
Anyway, too much musing on my autoimmune diseases.
I wanted to say how glad I am that I went to the doctor about the bowel pain I was having, and ended up in the hospital, because I’m alive.
So this day last year Johnny and I tried to go on a date. I got all dressed up (in the same clothes I’m wearing today coincidentally, which is huge, I’ll go into why later)…. and promptly became ill while driving. I can’t remember if we ended up doing anything later in the evening or not, but I don’t think we did.
All dressed up and can’t go out.
It’s huge that I’m in the same outfit, because between psych meds, lupus meds, and pregnancy I’ve spent nearly 7 years going up and down in weight so much that I went from a size 3 to a size XL (11/13 I believe is what XL is here in the US)… and back and forth… mostly in the middle, which is where I am now. My weight has seesawed and I’ve been all over the place. The fact my weight has been close enough for me to be in the same clothes is huge!
I did lose 14lbs when I was hospitalized last summer, so there was that drop between this picture and now. There was probably more of a drop than that since I’d been fighting the c. diff for awhile before that, but hey, the clothing still fits, and I’m excited about that!
I’m now a healthy and happy 130 (or there about)!!!!!!!!!!!
I became extremely ill – my kidneys were failing, my lupus was extremely active, and I had c. diff.
Oh, and my blood levels were wonky.
I was in the hospital for 12 days, and had doctors and nurses in and out of my room at all hours. I had a couple transfusions, had multiple antibiotics (first were iv before they figured out what was wrong, then oral), and was just a mess.
I’m so thankful to be alive.
First day in, no real idea what was wrong, so I was wearing a mask because we knew that my white blood count was shit.
A week in I wasn’t allowed anything but clear liquids and jello.
One week in – completely miserable.
11 days in, the day before I went home. I felt even worse than I looked. (To make it even worse, it was my daughter’s 12th birthday and I didn’t get to see her other than over video chat because of how sick I was!)
The transfusions that let me go home… also potassium. (And I had had my oral antibiotics by this time.)
I gained a friend somewhere the last couple days of the hospital stay. No idea when, it just appeared, and I was confused and not thinking clearly about it. I can’t remember much about parts of my stay and that’s one of them.