1 year.

Tomorrow is one year since I was hospitalized for colitis that we eventually learned was from C.Diff.
I’d go on methotrexate again in a heartbeat if I could, but I can’t use it again because of the damage that it and the c diff did to my kidneys. It helped so much with my autoimmune diseases even as it was doing that damage though. And the C Diff was due to the infections and antibiotics I had while on the methotrexate, because it lowered my immune system so much. I was so sick I could barely wake up. Once I was awake enough I could do things like talk on the phone, but I was having a hard time getting myself awake enough to remember my own name, let alone to talk to nurses or doctors or visitors. I struggled with that difficulty waking up for months after, though I no longer really deal with that.
My autoimmune diseases are back to where they were before the methotrexate, unfortunately.

I had a very bad day yesterday, with my autoimmune diseases. I told my family that it was one of the worst I’ve had for my joints in the last 3 or 4 months. Honestly though, it’s one of the worst I’ve had (excluding right around my surgery that I had in February) in most of a year. I’m scared that it’s going to become the norm again.

Anyway, too much musing on my autoimmune diseases.

I wanted to say how glad I am that I went to the doctor about the bowel pain I was having, and ended up in the hospital, because I’m alive.

Last summer I could have died..

I became extremely ill – my kidneys were failing, my lupus was extremely active, and I had c. diff.

Oh, and my blood levels were wonky.

I was in the hospital for 12 days, and had doctors and nurses in and out of my room at all hours. I had a couple transfusions, had multiple antibiotics (first were iv before they figured out what was wrong, then oral), and was just a mess.

I’m so thankful to be alive.

First day
First day in, no real idea what was wrong, so I was wearing a mask because we knew that my white blood count was shit.

Food one week inA week in I wasn’t allowed anything but clear liquids and jello.

Jenny one week in
One week in – completely miserable.

Jenny 11 days in
11 days in, the day before I went home. I felt even worse than I looked. (To make it even worse, it was my daughter’s 12th birthday and I didn’t get to see her other than over video chat because of how sick I was!)

Jenny transfusions
The transfusions that let me go home… also potassium. (And I had had my oral antibiotics by this time.)

Jenny pulseox friendI gained a friend somewhere the last couple days of the hospital stay. No idea when, it just appeared, and I was confused and not thinking clearly about it. I can’t remember much about parts of my stay and that’s one of them.